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Discussion Starter #1
Ive had phyriosis for a few year now,An have tried soo many treatments from my specialist,Nothing seems to work
..I am unsure what treatments to try next can anybody help me?
 

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Discussion Starter #3
Do you mean Pityriasis Rosea?
I'm not sure what that is if im honest

My Specialist informed me i had ''phyriosis'' It's a condition were my skin cells are growing faster than my actual skin So ive been told,Its extremly dry and can be itchy at times.
 

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It sounds like Pityriasis Rosea. I have never seen "Phyriosis" in any of the literature (medical journals). Is your specialist a dermatological specialist?

Do you experience itching, a rash, dry scaly patches and then sometimes some accomanying nausea and general malaise (feeling a bit under the weather or just unwell?) If so it is likely Pityriasis Rosea.

If this is it then you should discuss use of a corticosteroid with your doctor. He can prescribe an oral steroid to control it and also Acyclovir, which is used to treat herpes zoster (varicella virus--causes shingles in adults and chicken pox in children), can be effective in limiting the duration of flare ups.

If this is not it please explain what symptoms you do have.
 

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Discussion Starter #5
I really don't think i have 'Pityriasis Rosea',I'm not sure when it comes to diagnosis,Only going off what ive been told.
I have dry scaly patches on my legs arms and face and also on my scalp,It can be itchy and flakey,But other days its quite clear.I use a tar shampoo twice a day for my scalp,An i have a cream and ointment to apply to my skin,As well as using E45 cream throughout the day.
 

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The dry scaly and cyclic nature sounds a lot like Pityriasis. I have never heard of Phyriosis but that is not to say it does not exist as I have done little in terms of any dermatological studies and have little experience with it other than general diagnostics. That said I did look in both a medical database to which I am a member of (it helps find less common diagnoses) and also I did GOOGLE Phyriosis and Google also presents Pityriasis actually when looking it up. My first thought is that it may be an older, outdated name for the same condition. You do not have to experience all the symptoms to have Pityriasis and the cyclic nature and scaly dry patches are highly indicative of Pityriasis.

Do you eat a lot of processed foods like sugary foods, breads, cheeses, dairy? Do you drink alcohol often? This can be a food allergy as well which is why you may want to consider an elimination diet if you do consume any of these or drink alcohol a lot.

I am assuming the cream is a hydrocortisone cream? E45 is just a very moisture rich emollient cream which will keep the area hydrated but offers no medical benefits.
 

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Discussion Starter #7
Ive just realised i didn't have the correct spelling for ''psoriasis'' whoops

I realised you don't always get every symptom of the allergy..I would say i eat normal food sometimes..Like bread cheese and dairy,But mainly eat healthy foods..patatoes veg and meat etc,I don't drink unless it's a special occasion.
The cream i use for my face is called ''elicon'' im usure if it is hydrocortisone cream or not,I'm unsure what's in thee ointment,Your right about the E45 cream other than this im not sure what i should be using?
My specialist advised me to use E45 throughout the day and to use ''Elicon Cream'' first thing in the morning and before bed,I must admit that i don't always use it before bed,As the infected area is mainly around my eye brow's and nose,I could touch it in my sleep without knowing (If that makes sence lol)
 

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Shell--that makes much more sense!!! I was wondering what you meant and the only thing other than psoriasis, which is so common I thought you would have just said psoriasis if that was it, is Pityriasis.

OK--with psoriasis you can likely get your GP to give you light therapy which is really just prescribing a tanning salon. I know people here will freak but it is the best way to treat psoriasis in conjunction with topical ointments and possibly some oral medications like a corticosteroid as it is largely believed this is an autoimmune response.

The other thing you may want to do is to rule out food allergies and even go see an acupuncturist. They often can help believe it or not, especially a Chinese medical practitioner who can give you a mixture of herbs in the form of a very bitter tea which has shown great effectiveness in treating psoriasis.

Have you been using hydrocortisone cream? If so do be aware it thins skin over time and is not an ideal long-term solution for facial skin!
 

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Discussion Starter #9
I know i should never trust google's spelling


I have been to light therapy and it didn't go too well..I fainted

So im really unsure about going back for that treatment,I've never needed to use a sunbed until then and trust me to go an pass out! lol

I've also been for a chinese diagnosis,where i paid £30 consultation fee,they gave me two lots of herbal tablets which i took for 4 months but had no effect,I've also tried aloe vera drink for 3months also no effect(and thats stuff awful!),An i also drink green tea.
I understand that the creams i do use i have to becareful with,I had a steriod cream which worked ok,but you can't use it constant.
I'm really unsure as to what to try next,I'm not confident enough to show my legs in public because i have a few dry patches of skin and it doesn't look nice
 

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I think you need to discuss getting a glucocorticoid with your doctor. It is an oral steroid and it will quell any abnormal or hyper immune response which is what psoriasis is. If you cannot tolerate the light therapy and have only ok responses with topicals then this is your only medical option. You will need to be monitored by your doctor though. The other option is to go on a very strict diet to build your immune system which some with psoriasis swear by but it is very prohibitive.
 

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Discussion Starter #11
Sorry if this sounds dumb..But what is a glucocorticoid?And how do you mean by strict diet? No sugary stuff bread dairy etc?

Just trying to get my head around what your tellin me
 

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Sorry--a glucocorticoid is just a type of steroid. Your doctor will know what and how much to prescribe and also make sure you ask for "a liver panel" which you will want to monitor every couple of months-this is just a set of lab tests that monitor the health of your liver and I know that on the NHS you need to ask for this, they do not give it automatically.

Strict diet is raw foods, fish and very little processed foods. So like fruits, vegetables, salads, fish and only very high fibre breads and cereals and instead of milk do soy or rice milk. A good probiotic tablet will help too (acidophilus/bifidus tablets from Hollands and Barretts is great).

Hope that helps some. Many times diet alone can actually put psoriasis into a complete remission state meaning it goes away.
 

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Discussion Starter #13
Thanks for all your help..If im honest im a little scared of go in the steriod treatment,I'm really soft when its comes to things like this
,But will deffnatly give the dietand probiotic's ago..Anythings worth a try right?
I'll keep you posted,Thanks again
 

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Ive had phyriosis for a few year now,An have tried soo many treatments from my specialist,Nothing seems to work
..I am unsure what treatments to try next can anybody help me?
I am sorry - but I find this really disturbing. Asking for medical advice on an anonymous website and then misspelling the name of the condition on top of that! Not just disturbing but scary too!
 

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Discussion Starter #17
I am sorry - but I find this really disturbing. Asking for medical advice on an anonymous website and then misspelling the name of the condition on top of that! Not just disturbing but scary too!
Everyones welcome to thier say..I did 'right' myself when i realised,After all were all human and who doesn't make mistakes in life! I'm sure you have?!
Theres that many medical conditions these days,even i would'nt know how to spell half of them,Least i tried
 

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In fairness Mirecka you do not have to spell something correctly to have it and this is a skin site and she was asking about a skin condition and possible treatments, she was not asking for people to prescribe her anything or to even give a diagnosis, she already had that and anything suggested would be run past her treating physician anyway unless it were an alternative or topical solution. I do not think she meant any malice or harm and I have seen many posts on various conditions and treatments here.
 

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Of course I know that you can have a medical condition without being able to spell it. And you can be taking medication without being able to spell that too.

My concern is not with the misspelling of a word. Goodness knows, that has happened to all of us at one time or another, even with spell-check.

The problem here is that the misspelled word led us down one rabbit trail for one condition (for 7 posts) which turned out to be the wrong one. Alot of information was shared that turned out to be inappropriate for the actual condition. At least in this case the error was discovered and the discussion redirected. In other cases that might not be the case - and this is what troubles me.
 

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Point well taken Mirecka! I misunderstood your post and felt a bit bad for Shell! But yes, I was very baffled by phyriosis as I thought after years in school I had remembered almost everything but that one went past me--and yes as is said in UK--led me up a path. BUT we did get the actual which is good and we did learn to ask people to check spelling when we do not recognise something!
 
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