[MsX]

I have vitiligo, a skin depigmentation disorder. My dermatologist said it's a no-known cure skin disorder.

Have been surfing the net for info. So far, the info gathered is rather disappointing.

Any one in this forum has vitiligo or know of someone had this skin disorder and successfully treated it? What are your experiences? Really no cure? But I do read about vitiligo patients getting repigmentation.

I'm confused ...

 

[mutti]

No you are not ruined, don't lose hope. There are treatments depending on how much of your skin has been affected. You should find a doctor who has specialized in vitilgo treatments. There are some peole who have been successful in repigmenting their skin. I think for people who have more than 50% of their body affected, they usually recommend depigmenting the rest of the skin so it all looks uniform.

 

[Rishi]

Vitilago can be tough, but there are options. There isn't any "cure" but there are treatments that can make living with Vitilago much easier. Like Mutti said, find a doctor in your area who is an expert and he can advise you better than your GP. You can also ask your GP for a referral.

 

[Elizabethem]

Have you looked through WebMD? They have lots of resources on there.

Even though there's no cure, it doesn't mean the end of the world, at least, it doesn't have to mean it. There are plenty of people who live with incurable diseases, you just have to accept it and stay positive.

 

[kellylynne1968]

my teenage daughter has this, and it is growing. it shows up the most in the summer months because she gets real tan. Huge white blotches on her knees, elbows, knuckles, toes....she just started getting it around her lips and she is not happy. We too, have researched options...laser therapy..expensive and doesnt really work. She has learned to live with it, and she is drop dead gorgeous, but people can be mean and in her earlier years kids would call her "cow". We go to the beach together and girls stare at her as we walk by and i just want to kill them..but she holds her head high and keeps walking.

I hope it does not end up on her face. Surely there is something that can be done, i hear fish oil helps it to not spread, any one heard that?

 

[Freddy]

I know of a lady that has this cured. I researched it because an ex-gf of mine had it. The lady went to Cuba had some sort of placenta used in her therapy. She was there for a week. She claims that she has the spolotes all over her back and stuff. I could look into it again if need be, but I can tell you right off the bat that its an expensive proposition.